Please help TMA speed the time to diagnosis by supporting myositis awareness! Donate Now!
Alicia Lowther’s husband Dan found out after years of misdiagnoses that he had inclusion body myositis (IBM). It was a shock to both of them. “Dan decided he was going to spend his energy enjoying his life rather than delving into myositis issues, which I support,” Alicia said. She reached out to The Myositis Association…
Continue Reading
Thanks to our partners at LiftSeat for sharing this informative article. For most people, using a toilet isn’t something you think twice about. However, when living with a progressive neuromuscular disease like myositis, performing this basic function requires planning. Using a standard toilet when you have lower body weakness can be challenging and even dangerous,…
Continue Reading
by Joe Feidt I was having trouble swallowing. That’s how it started. It’s now been 11 years since I heard my neurologist say, “Joe, I’ve got good news and bad news. The good news is you don’t have ALS; the bad news is you have IBM.” I said, “I have WHAT?!” My reality today is…
Continue Reading
Results of a patient-led research project Editor’s note: This is part three of a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized Medicine Centre at Murdoch University, Australia. He lives with IBM and turned his research skills toward a study to understand the priorities of those living…
Continue Reading
COLUMBIA, MD, UNITED STATES, May 1, 2025 /EINPresswire.com/ — May is Myositis Awareness Month, a time dedicated to raising awareness about a rare autoimmune disease that affects muscles and skin. The Myositis Association (TMA) leads this initiative, aiming to educate the public, support those living with myositis, and advocate for better treatments and a cure….
Continue Reading