Practical Concerns

No matter how shocking it is to find out you have myositis, life goes on. There are bills to pay, meals to cook, daily life to plan and live. The Myositis Association's members say that figuring out how to meet the practical and logistical challenges of living with myositis gives them a sense of empowerment. Members offer creative solutions to everyday challenges on TMA's online bulletin boards. TMA also collects ideas in its publications, and directs newly-diagnosed patients to sources they can trust. Visit this section often, as it is updated when new resources are found. If you've found a particularly helpful agency, book, product or homemade invention, share it with TMA via email or the bulletin boards.

There are literally thousands of resources for maintaining independence. Each of the following links provides a gateway to dozens of other resources.

Accessibility

The Do-able, Renewable Home
http://www.appliance411.com

Disability information for myositis patients

Disability

Information on career training, education, rights

http://www.washington.edu/doit/Careers/

Assistive technology

http://www.assist.com
http://www.disabilityresources.org
http://www.discovertechnology.com

Products

http://www.stand-aid.com/
http://www.liftseat.com/
http://www.barrierfreelifts.com/
http://www.ez-step.com/

Clothing

http://www.wardrobewagon.com

Mobility

http://www.accessunlimited.com

Advocacy

http://www.aapd.com
http://www.usdoj.gov
http://www.wemedia.com
http://www.wapd.org

Personal mobility

http://www.americanmobility.com

When there is an emergency

Myositis issues for emergency personnel


 
 
 

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