Mark Your Calendar: November 28, 2023

The Myositis Association is an invaluable resource for those who live with this rare disease. By supporting TMA, you become a partner in providing connection and support for those with myositis and their families, evidence-based information about these challenging diseases, advocacy to support the rare disease community, and research funding to discover better treatments and, ultimately, a cure for these devastating diseases.

As a nonprofit patient support organization, TMA depends on gifts from individuals to make our impact. On Giving Tuesday, you can make a difference for those who live with myositis and their families.

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Find a Support Group

If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the Support Group network.

Find a Support Group
APC 2023 PreOrder Recordings

2023 International Annual Patient Conference: Session Recordings

TMA’s 2023 International Annual Patient Conference offered expert presentations on a great variety of topics of interest to those who live with myositis. If you weren’t able to attend this year, or if you want to revisit some of the sessions, we offer a complete package of recordings from nearly every session on the conference agenda.

Learn more!

Myositis Awareness Month - Virtual Summit: Beyond Limits

It’s not too late to be part of TMA’s incredible 2023 Virtual Summit! Registered participants can access all the presentations on the virtual platform through June 22. Register now and take advantage of this opportunity to learn from leading experts in myositis research and care, and gain valuable insights to help you on your myositis journey.

Learn more!

Patient Stories

Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.

See All of Our Stories

Upcoming Events

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Myositis 101 for Patients

The Myositis 101 for patients videos by Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book “Managing Myositis: A Practical Guide” explain myositis management and treatment in terms that are accessible by all.

2023 International Annual Patient Conference: Session Recordings

TMA’s 2023 International Annual Patient Conference offered expert presentations on a great variety of topics of interest to those who live with myositis. If you weren’t able to attend this year, or if you want to revisit some of the sessions, we offer a complete package of recordings from nearly every session on the conference agenda.

TMA's Affinity Groups

Our increased virtual environment has allowed for connectivity that surpasses geographic location. In addition to our traditional KIT support groups, TMA is supporting meeting circles with outreach efforts targeted toward supporting and extending our organization’s reach into new communities.

Myositis Awareness Month

Myositis Awareness Month

May is Myositis Awareness Month! Celebrate with us by raising your voice and letting the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness, sharing resources, educating patients and the public about myositis diseases, sharing strategies for advocacy, and building a stronger and more connected myositis community. Join us!

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