Support Groups

As a member of The Myositis Association, you are invited to join the TMA Keep In Touch (KIT) support group network. Joining KIT connects you with other myositis patients and their families. When you choose this TMA service, your name, contact information and diagnosis will be added to the list of support group members in your area.

Why should I join a Support Group?

Those with myositis face the difficulty dealing with a chronic illness, plus the extra challenge of having a rare disease most people have never heard of: Because the disease is so rare, it's hard to find others who understand what you are going through and the challenges posed by myositis. TMA helps resolve this problem through its Keep In Touch (KIT) member support network. KIT groups offer members the chance to join with others in their area and share mutual support, friendship and ideas.

Research has found that people who receive support from a social network cope better, feel more in control and have better outcomes than those who are isolated. When TMA meets with medical specialists from all over the country, they tell us their most urgent need is for a support system for their myositis patients, and we answer this need with KIT.

If you are interested in maybe leading a Support Group click here.

The volunteer leaders who manage these local support groups devote their personal time and energy to organize and encourage communication among local TMA members. KIT members interact with each other through face-to-face support group meetings, newsletters, telephone and e-mails. Some groups have regularly scheduled meetings with speakers, meals and local activities.

If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the KIT support group network. To do so, click here. If you are not a TMA member and want to join to participate in KIT, join TMA now!

 

 

Updated March 2012

 
 

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