Join TMA Worldwide Myositis Support Group: Peer Support to Help You Thrive
In honor of the international members who have consistently attended our TMA Nationwide myositis support group since its inception in 2022, we have updated the name to more realistically represent the population it serves. TMA Worldwide will continue the group’s commitment to monthly virtual myositis support by diagnosis. Co-led by up to five trained and certified support and/or affinity group leaders from various regions, we also provide a safe space for our TMA Care Partner Affinity Group to meet in their own breakout room!
Whether you’re navigating a new diagnosis or you’re farther along in journey and managing myositis well, this group provides a vital space to connect, share, and find encouragement. Your story matters—by joining, you can provide and receive hope and support to ease your life.
When?
First Saturday of every month at:
1:00 pm – 2:30 pm ET | 10:00 am – 11:30 am PT
Meetings feature breakout rooms by diagnosis, so you can connect with others who truly understand your specific condition, including:
- Antisynthetase Syndrome (ASyS)
- Dermatomyositis (DM)
- Inclusion Body Myositis (IBM)
- Juvenile Myositis (JM, JDM)
- Necrotizing Myopathy (NM, NAM, IMNM)
- Polymyositis (PM)
- Overlap Myositis
- TMA Care Partner Affinity Group (for family and friends)
To honor the care partner journey (as well as their patient journey), we ask that your loved one attend the breakout room for their diagnosis while you attend the breakout room for care partners. This would mean being on two different devices in separate rooms so you each have privacy. Both the patient journey and the care giver journey is difficult, and maintaining a healthy relationship while also facing myositis together is not easy. This is an opportunity for everyone to process their feelings safely without worrying about hurting the other person’s feelings. So we appreciate you honoring this safe space by attending the appropriate breakout room.
Breakout rooms available each month depend on who attends at the time of the meeting. We pre-assign breakout rooms based on your selection when you register. While we do not offer medical advice, this is the perfect place to discuss what has worked for you, hear from others in similar situations, and consider the options others are exploring. Most importantly, it’s a reminder that you are not alone. Join us and tap into the strength of a community that truly understands.
