Many community members responded when we asked them to share their stories and insights to help others. Here is some of the best wellness and self-care advice from fellow TMA members!
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Michelle Watson
Michelle Watson was only 27 when she found herself unable to get up out of a chair. She was working at a hospital at the time, and after getting bloodwork, her doctor called her and said “Drop what you’re doing and come to my office.” One of her labs was 100 times the normal range….
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Dan and Alicia Lowther
Myositis Awareness Month is a time to tell the story of your myositis journey. Thanks to TMA members Dan and Alicia Lowther for sharing their journey in this way with us. The couple was featured in the film “Not The Life We Wanted: An Inclusion Body Myositis Documentary.” It’s a compelling new documentary that features…
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Polymyositis and interstitial lung disease: My dual diagnosis story
By Linda Z. The journey for many of us with myositis can be complicated by overlapping diagnoses such as Sjogren’s, lupus, or fibromyalgia to name but a few. For me, this was polymyositis and interstitial lung disease (ILD). A dual diagnosis often means juggling varying demands in medications, treatments, physicians, and prognoses. My dual diagnosis…
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Eli Older
During the 2024 Global Conference on Myositis (GCOM) that took place in Pittsburgh in March, a group of global myositis patient organizations, led by TMA, wanted to be sure the patient’s voice was heard throughout the scientific sessions. Eli worked with TMA to tell his harrowing story of going from healthy to nearly dying from…
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