The Myositis Association has received many questions from the community about the Covid-19 vaccines and whether they are appropriate for people with myositis. The situation is complex (multiple vaccines, different timeline for approvals in different countries, availability issues) and is further compounded by each individual’s medical condition. TMA recommends that people with myositis make their own decision on whether to…
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In a two-part video series, Dr. Rohit Aggarwal, chair of TMA’s board of directors, answered specific questions from myositis patients. He also released a video on the overall effectiveness and safety of the vaccines. You can find both videos here. The following are Dr. Aggarwal’s answers to the most common questions asked by myositis patients. Thanks to…
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Welcome the Myositis Mavens In early November, TMA launched the “Myositis Mavens,” a group trained in community outreach and education. The term “maven” comes from Yiddish, meaning “one who understands.” Mavens are those with deep understanding acquired through experience over the years, and TMA believes this is a fitting title for our trained patients and…
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Looking fit and energetic, the rock hero kicked off the Virtual Annual Patient Conference by remembering bits of his own journey with IBM and stressing the importance of supporting myositis research. His introduction to the Conference kicked off TMA’s biggest Annual Patient Conference ever, attended by more than 600 myositis patients from all over the world. Grammy…
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Remember TMA on “Giving Tuesday” Many of you will have received a letter from TMA’s board chairman, Jim Matthews, about including TMA in your year-end holiday donations. While we welcome donations at any time; and of any amount, many of our members like to make small donations on “Giving Tuesday,” as they go forward with…
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