Coronavirus Update

Coronavirus disease also known as (COVID-19) is a respiratory illness that can spread from person to person. Symptoms include fever, cough, shortness of breath. The virus can lead to pneumonia in both lungs. Those who are immunosuppressed and/or elderly are particularly vulnerable to COVID-19 according to Dr. Rohit Aggarwal, Associate Professor of Medicine, Medical Director, Arthritis and…

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Economic Challenges of Long Term Care

A recent article published in the Courier Newsroom discussed the challenges of caring for those with chronic illnesses and the economic and financial burdens that families face when dealing with debilitating disease. “Studies indicate that more than half of older Americans will eventually require long-term care, with the average lifetime long-term care costs for Americans…

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Rare Disease Week on Capitol Hill

TMA is very excited to be participating again Rare Disease Week on Capitol Hill  with our partner, The Every Life Foundation (February 24-29).  Last year, we were able to secure 5 meetings with legislators, attended a briefing, had a tour of the clinic at NIH and lunch with NIH myositis researchers.  This year looks to…

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Eva Avelino

Eva Avelino: Polymyositis

Eva, from the San Francisco Bay area, was diagnosed with polymyositis in 2012. As a registered nurse, she knew something was wrong when she was unable to walk up the stairs after her shift.

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