As the TMA blog reflects, 2024 was a busy and exciting year for TMA! We published 45 posts, including 15 personal stories from members sharing how they live their best lives with myositis. This is three times as many blog posts as in 2023 and the most we’ve ever published in a single year! Following…
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Dermatologist Dr. David Fiorentino is excited about the possibilities of cell therapies to treat autoimmune conditions like dermatomyositis (DM). In collaboration with rheumatologists and bone marrow transplant specialists at Stanford University, he is conducting a small, phase 1b clinical trial testing KYV-101, a CAR T cell therapy that targets a protein called CD19 on the…
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By Julia Nickerson Noriel Cunanan lit up every room he entered. With his radiant smile and a generous, inspiring spirit, he brought energy and optimism wherever he went. A devoted friend, he always offered a helping hand, lifted spirits, and sparked fresh ideas. His battle with myositis began suddenly with a rash in late February…
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TMA deeply values every voice in the myositis community. Every day, we are inspired by individuals living and thriving with myositis. Through your generosity, we’ve been able to share powerful stories of resilience from all corners of the world. Will you help TMA continue sharing stories of hope and support throughout our community? We can’t do…
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The Family and Medical Leave Act (FMLA) has long been a cornerstone of employee rights in the United States, providing eligible employees with up to 12 weeks of unpaid, job-protected leave for various family and medical reasons. In an opinion letter dated November 8, the US Department of Labor (DOL) clarified that FMLA leave can…
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