Our thanks to all of you for making TMA’s Virtual Annual Patient Conference the biggest one ever, reaching more than 600 people with myositis, their families and care partners. From the inspiring greeting from rock legend Peter Frampton, himself an IBM patient, to the attendees who still continue informal chat room conversations well after the…
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Grammy award winning artist, Peter Frampton’ biography Do You Feel Like I Do?: A Memoir in his own words written with acclaimed music journalist Alan Light, will be published in hardcover, e-book, and audio formats on October 20 by Hachette and is available for pre-order NOW. In this book, Frampton shares stories of his diverse…
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Join Dr. Rohit Aggarwal, Associate Professor of Medicine, Medical Director, Arthritis and Autoimmunity Center, University of Pittsburgh, and Chair of TMA’s Medical Advisory Board for TMA’s first twitter chat on “Empowering the Patient in the Digital Age on May 20th at 12:00pm ET. This twitter chat, led by Dr. Aggarwal on behalf of TMA, will…
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It is safe to say that all of our lives have significantly changed over the last month. It is important to acknowledge that these are uncertain and unsettling times. As you continue this challenge each and every day, The Myositis Association walks beside you. Here are some vital tips to help you cope with…
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Date NameAddress Dear Senator/Representative/Governor _____________________: My name is _______________, and I am a __year old man/woman living with ______(type of myositis). I was first diagnosed _______. I writing to you today as a member of the myositis community because there is a national shortage of hydroxychloroquine. On March 19, it was announced that chloroquine and hydroxychloroquine were showing promise in the treatment for COVID 19. I am a member of…
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