My name is Cynthia Ikediashi. I reside in Lagos, Nigeria. Early in 2009, while in my third year at the university, I started experiencing weakness in my arms, thighs, and legs accompanied by extreme tiredness, which happened to be my very first symptom. Before the middle of the year, I was able to get an…
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Robert Grun and his wife were expecting twins. Robert was in his mid-20s working as a compliance officer on mergers, acquisitions, and insider trading in a Wall Street firm in the Twin Towers. He worked all the time, but he was looking forward to starting a family. Three months after his boys were born, he…
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Michelle Watson was only 27 when she found herself unable to get up out of a chair. She was working at a hospital at the time, and after getting bloodwork, her doctor called her and said “Drop what you’re doing and come to my office.” One of her labs was 100 times the normal range….
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Myositis Awareness Month is a time to tell the story of your myositis journey. Thanks to TMA members Dan and Alicia Lowther for sharing their journey in this way with us. The couple was featured in the film “Not The Life We Wanted: An Inclusion Body Myositis Documentary.” It’s a compelling new documentary that features…
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During the 2024 Global Conference on Myositis (GCOM) that took place in Pittsburgh in March, a group of global myositis patient organizations, led by TMA, wanted to be sure the patient’s voice was heard throughout the scientific sessions. Eli worked with TMA to tell his harrowing story of going from healthy to nearly dying from…
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