When the NIH and FDA canceled their Rare Disease Day celebration in Bethesda on February 28, TMA, in partnership with Nori’s Fight and Myositis International Health and Research Collaborative Alliance (MIHRA), brought the myositis community together virtually to share the latest in myositis research and hear those who live with these diseases tell the stories…
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When the NIH and FDA canceled their Rare Disease Day celebration in Bethesda on February 28, TMA brought the myositis community together virtually for the We Care for Rare Summit. In partnership with Nori’s Fight and Myositis International Health and Research Collaborative Alliance (MIHRA, community members shared the latest in myositis research and heard the…
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On Monday, February 10, 2025, Rich DeAugustinis, Vice Chair of TMA’s Board of Directors, testified to the Georgia Senate Committee on Health and Human Services in support of the Georgia Hope for Patients Act (S.B. 72). This proposed legislation, sponsored by Georgia Senator Matt Brass, will allow patients who have severely debilitating or life-threatening illnesses to…
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The Myositis Association (TMA) recognizes that the best hope for a cure for myositis diseases lies in research. Since 2002, TMA’s annual research grants program has approved 68 projects totaling nearly $8.2 million to study the underlying causes and natural progression of myositis, develop better treatments and more effective therapies, and ultimately to create a cure…
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As the TMA blog reflects, 2024 was a busy and exciting year for TMA! We published 45 posts, including 15 personal stories from members sharing how they live their best lives with myositis. This is three times as many blog posts as in 2023 and the most we’ve ever published in a single year! Following…
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