TMA was honored to partner with Myositis Support and Understanding (MSU) to host the Externally Led Patient Focused Drug Development (PFDD) meeting for adult dermatomyositis (DM) on June 7. View the replay of this important day online. Through the PFDD, we captured DM patients’ experience, perspectives, and needs. The program was designed to inform the…
Continue Reading
TMA medical advisor and patient advocate Ingrid de Groot insists patients be involved in medical research.
Continue Reading
Many community members responded when we asked them to share their stories and insights to help others. Here is some of the best wellness and self-care advice from fellow TMA members!
Continue Reading
By Linda Z. The journey for many of us with myositis can be complicated by overlapping diagnoses such as Sjogren’s, lupus, or fibromyalgia to name but a few. For me, this was polymyositis and interstitial lung disease (ILD). A dual diagnosis often means juggling varying demands in medications, treatments, physicians, and prognoses. My dual diagnosis…
Continue Reading
By Theresa Curry She was a successful artist, both critically and financially, she started businesses, taught others how to start businesses, brokered real estate, developed high-end subdivisions, and owned a business management firm. All these were minor battles, mere projects compared to the challenges Betty Curry faced at 64 years old when she was diagnosed…
Continue Reading